The Journal of Participatory Medicine has released two issues (first, second). They help explain what participatory medicine means. The best article I have found among them is called “What It Will Take to Embrace Participatory Medicine: One Patient’s View” by Kate Lorig. Here is one bit:
In one of my regular clinics, I am met with a sign that tells me that if I am a half hour late, my appointment will have to be rescheduled. I once asked what would happen if I were not seen in a half hour and was told to sit down and wait. Last year while waiting for scheduled appointments I read five full-length books (five hours each).
But overall the articles, even this one, are long on generalizations and short on specifics.